Sunday, May 3, 2009
Update on Grandpa
Please keep Nathan and Alyssa's grandpa in your thoughts and prayers. Last week the cancerous growth was removed and we are awaiting the results of the biopsy ( I guess to find out more about what kind of cancer it is and if it has spread more etc.), however during the surgery, Doug (a.k.a grandpa) suffered small heart attack (this is the 2nd heart attack in less than a year, first one was quite severe). They need to put a stint in his artery and it will take him about a month to recover. Grandpa cannot eat orally at all. He has a g-tube ( just like Nathan's) and he takes all liquids, meds and any food through his tube. He's currently still in the hospital. Eventually he will be released and it is expected that he go home with the feeding tube - no update on how long he will have it but my guess is it could be a while. Both Sean and I are hopeful that he will stay with Uncle Ken and aunt Jody but we're not sure if he'll take them up on their offer to stay with them. He lives by himself on 4 acres in a big house. Having family around to help him through this is just what he needs. Sean and I would like him to reconsider a move to BC once he recovers.
Thursday, April 30, 2009
My new alarm clock
So I'm off work today and I thought how nice is this that I don't have to get out of bed. As I'm lying there my alarm clock goes off at 6:30 am and I shut it off, no need to get up I think to myself.... all of suden I hear a little voice from the other room calling, "Mum Mum" "Mum Mum" I don't think I've ever leaped out of bed so quickly in my life. So much excitement because although he has said "mum" before he has never done it waking up in the morning. I hope to hear my new alarm clock every morning. So exciting, it is these little milestones that keep me going. Have a great day everyone, I know I will, I obviously got up on the right side of the bed.
Wednesday, April 29, 2009
Nathan moves out
Last November Nathan moved into our room. He was refluxing and having some difficult nights and I just felt more comfortable having him close by. In January, Uncle Patrick came to visit from England and stayed with us for several months. We gave him Nathan's room as it was empty and it worked out great. Now Uncle Pat is back home in England (sniff, sniff, we miss you) and it's time for Nathan to move back into his room. We tried putting him into his toddler bed but he just cried and seemed afraid. So we put the crib back together in his room and he sleeps through the night (wasn't sure if I'd get a full night sleep again.) I guess looking through the bars gives him a sense of security. He's just not ready for a big boy bed yet and I'm okay with that. After all he is my baby.

This is Nathan's view out of his crib

inside the baby jail

View from Security Camera #3

View from Security Camera #1

Tuesday, April 28, 2009
Want happens if I pull on this...
Our little grabber has discovered his feeding tube. He's pulled it out twice in less than 48 hours and I'm not even sure how he does so without hurting himself. He pulls it with the ball of water intact and with 5 mls of water in it. He doesn't cry, doesn't seem to be bothered by it. How is that even possible? Oh yeah like I need another thing to worry about....
When the Stoma nurse ( that's what I call her) told me that if the mic-key button ever came out I needed to get the button back in right away,not to wait because after an hour or so it will start to close up. I remember thinking okay but I probably have more time than that. Well she wasn't kidding!!!
The first time Nathan pulled his button out was at daycare. Tanya called me right away but I was on the road and didn't get the message until 20 minutes after she called. I left work immediately (knowing that this was time sensitive) and by the time I got to Nathan's daycare his stoma was almost closed ( It's a 30 minute drive to daycare from work) . Only 50 minutes and the stoma was already closing, luckily I was able to get it back in. Can you believe that! I was shocked!
Over the weekend, Nathan did it again, this time we added an extra 1ml of water to the ball. So far so good but man does he keep us on our toes. He is after all the Little Grabber.
When the Stoma nurse ( that's what I call her) told me that if the mic-key button ever came out I needed to get the button back in right away,not to wait because after an hour or so it will start to close up. I remember thinking okay but I probably have more time than that. Well she wasn't kidding!!!
The first time Nathan pulled his button out was at daycare. Tanya called me right away but I was on the road and didn't get the message until 20 minutes after she called. I left work immediately (knowing that this was time sensitive) and by the time I got to Nathan's daycare his stoma was almost closed ( It's a 30 minute drive to daycare from work) . Only 50 minutes and the stoma was already closing, luckily I was able to get it back in. Can you believe that! I was shocked!
Over the weekend, Nathan did it again, this time we added an extra 1ml of water to the ball. So far so good but man does he keep us on our toes. He is after all the Little Grabber.
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