My new alarm clock

So I'm off work today and I thought how nice is this that I don't have to get out of bed. As I'm lying there my alarm clock goes off at 6:30 am and I shut it off, no need to get up I think to myself.... all of suden I hear a little voice from the other room calling, "Mum Mum" "Mum Mum" I don't think I've ever leaped out of bed so quickly in my life. So much excitement because although he has said "mum" before he has never done it waking up in the morning. I hope to hear my new alarm clock every morning. So exciting, it is these little milestones that keep me going. Have a great day everyone, I know I will, I obviously got up on the right side of the bed.

Nathan moves out

Last November Nathan moved into our room. He was refluxing and having some difficult nights and I just felt more comfortable having him close by.  In January, Uncle Patrick came to visit from England and stayed with us for several months. We gave him Nathan's room as it was empty and it worked out great. Now Uncle Pat is back home in England (sniff, sniff, we miss you) and it's time for Nathan to move back into his room.  We tried putting him into his toddler bed but he just cried and seemed afraid. So we put the crib back together in his room and he sleeps through the night (wasn't sure if I'd get a full night sleep again.) I guess looking through the bars gives him a sense of security. He's just not ready for a big boy bed yet and I'm okay with that. After all he is my baby.

This is Nathan's view out of his crib

inside the baby jail

View from Security Camera #3 

View from Security Camera #1

Want happens if I pull on this...

Our little grabber has discovered his feeding tube. He's pulled it out twice in less than 48 hours and I'm not even sure how he does so without hurting himself. He pulls it with the ball of water intact and with 5 mls of water in it. He doesn't cry, doesn't seem to be bothered by it. How is that even possible? Oh yeah like I need another thing to worry about....
When the Stoma nurse ( that's what I call her) told me that if the mic-key button ever came out I needed to get the button back in right away,not to wait because after an hour or so it will start to close up. I remember thinking okay but I probably have more time than that. Well she wasn't kidding!!!

The first time Nathan pulled his button out was at daycare. Tanya called me right away but I was on the road and didn't get the message until 20 minutes after she called. I left work immediately (knowing that this was time sensitive) and by the time I got to Nathan's daycare his stoma was almost closed ( It's a 30 minute drive to daycare from work) . Only 50 minutes and the stoma was already closing, luckily I was able to get it back in. Can you believe that! I was shocked!
Over the weekend, Nathan did it again, this time we added an extra 1ml of water to the ball. So far so good but man does he keep us on our toes. He is after all the Little Grabber.

Grandpa is sick

Over the past few years we have had some difficult times. Many of those times surrounded Nathan's health and we pulled through it but tonight it's a different struggle for our family. My father-in-law Doug (aka Sean's dad), has struggled with his health since Mary ( Sean's mom) was admitted to hospital a few years ago. She suffers from dimensia and it is quite advanced. In 2007, Sean and I made a trip to Edmonton Alberta with the kids to see her but it was impossible to carry on a conversation with her. She did not know who I was and when she saw the kids she simply stated that she always wanted to be a grandma, not realizing these were her grandchildren. It was so sad.
Shortly after her admittance, Sean's dad suffered a heart attack. He recovered and was doing well until about two or three months ago. Suddenly he started having pains in his mouth. I don't have a lot of detail at the moment but the short of it all is that there is a growth on his tongue. They have removed it and now we wait for the outcome of test. He is currently in the hospital and until yesterday had a nasal gastric feeding tube ( tube through the nose to his stomach) because he cannot eat orally. Tonight we found out that the nasal gastric tube did not work and so apparently he now has one directly in his stomach and that seems to be working. I'm thinking a mic-key like Nathans? REALLY? Doesn't that seem drastic? Why wouldn't they give him fluids through an IV. Sean and I both feel that this may be more serious than we thought. We don't expect him to get out of the hospital anytime soon. I suspect that Sean will be heading out to Edmonton sometime soon.
I'm emotinally drained. I've had so much on my mind lately. I'm trying to sort out through so many different issues, some of which are and have been sitting on a back burner for quite sometime. Sometimes I really wonder just how much crap does one have to go through?