Friday, February 27, 2009

Retarded

Why do people feel that they can dismiss me as being over sensitive and taking things too personally when I ask that they please not refer to someone as "being retarded".
I find this hurtful.
Calling someone a "nigger" is taboo or not politically correct. It's not accepted.
Saying "Oh my god" can be offensive to someone who is religious or swearing can be understood as offensive at anytime but when it comes to retarded, I'm too sensitive? Are you kidding me??
Well guess what..... I AM FREAKIN SENSITIVE ABOUT IT AND I AM GOING TO TAKE IT PERSONALLY BECAUSE YOU KNOW WHAT?? IT'S PERSONAL TO ME. IT AFFECTS MY LIFE EVERY SINGLE DAY.
Yes the word retard is a word, but to some of us it's much more than a figure of speech. It's about my little boy, it's about a comparison. When retard is used to degrade another person or essentially say that they are worthless or not as important, they in turn are saying that about my son. That to me is hurtful.
Please be respectful. I'm only asking that you think before you speak, sometimes a simple word can have so much more meaning than you think. It's not the word that is offensive, it's how it's used that is.

Monday, February 16, 2009

Today

Today is a very special and meaningful day for our family.
Today I know that all those hours I spent researching and trying to get answers have helped me understand my son.
Today means that I was right and that I really do know my son better than anyone.
Today was a long awaited day
Today I feel happy because, I finally get some closure
Today I can say that my son is very unique because only 1 in 300,000 people have this extremely rare genetic syndrome.
Today our geneticist confirmed what we knew all along. Nathan's molecular testing confirmed that he has Rubinstein-Taybi Syndrome (RTS).
Today my son has RTS. February 16th 2009 is a day I will never ever forget.

Sunday, February 15, 2009

Now you know your ABC's next time won't you sign with me?

Alyssa has really taken an interest in signing. It's been wonderful because her and I practice together and we both enjoy it. Signing times is one of her favorites. During dinner we often have signing challenges to see who can sign a word the fastest or sometimes we'll just sign instead of talking to see if we can understand each other. It's cute and a great way to build and practice on our signing skills. Lately we've been working on our alphabet together and so yesterday when we got to a local park and she found the alphabet chart she was very excited. So here she is showing us all how to sign the letter "B"

Sometimes there's just too much to do


and napping would mean missing out on what everyone else is doing. Nathan asleep with bunny bear on top of his train table.